§90-113.102. Intractable Epilepsy Alternative Treatment Pilot Study database; departmental duties  


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  • (a)        The Department shall create a secure, electronic, and online Intractable Epilepsy Alternative Treatment Pilot Study database registry for the registration of pilot studies, neurologists, caregivers, and patients as provided by this Article. The registry must be accessible to law enforcement agencies in order to verify registration of caregivers. The registry must prevent an active registration of a patient by multiple neurologists. At a minimum, the database shall consist of the following:

    (1)        The name and address of each registered caregiver and the name of the pilot study the caregiver is associated with.

    (2)        The name and address of each registered patient and the name of the pilot study the patient is associated with.

    (3)        The name, address, and qualifying institutional affiliation of neurologists conducting pilot studies pursuant to this Article.

    (4)        The name, institutional affiliation, affiliated registered neurologists, and parameters of pilot studies.

    (b)        The Department shall contact the county department of health where the patient resides and provide the following information:

    (1)        The name and address of the registered caregiver.

    (2)        Identifying information contained on the caregiver registration card.

(2014-53, s. 2.)